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Table 2 Recruitment and characteristics of the participants in the four focus groups

From: Patient-Initiated Follow-Up (PIFU) as reorganized support for increased patient involvement – focus group discussions among patients’ with inflammatory arthritis

 

Total

FG1

FG2

FG3

FG4

Agreed date of participation, n

37a

8

10

8

12

 Notified cancellationb

10

1

1

3

5

 Did not show up on the dayc

3

1

0

1

1

Participants’, n

25

6

9

4

6

Diagnosis, n:

  RA (positive/negative)

21 (11/9)

4 (0/4)

8 (3/4)

3 (3/0)

6 (5/1)

  PsA

3

2

0

1

0

  axSpA

1

0

1

0

0

Sex

  Female, n (%)

20 (80)

6 (100)

4 (44)

4 (100)

6 (100)

Age, years (mean [range])

61.8 [28–79]

58.8 [47–62]

60.0 [28–76]

64.3 [51–74]

66.0 [51–79]

   ≥ 63 (67d) year , n

14 (10)

1 (1)

6 (4)

3 (2)

4 (3)

Years since diagnosis (mean [range])

14.3 [4–59]

8.0 [4–16]

17.9 [7–59]

13.5 [9–22]

15.8 [4–28]

Weekly work hours, n

  Retired or working ≤16 h/week

17

5

5

2

5

  Working ≥37 h/week

8

1

4

2

1

Civil status, n

  Married/cohabitant

18/2

4/0

6/1

4/0

4/1

  Living alone

4

1

2

0

1

  Did not answer

1

1

0

0

0

Routine attendance in the nurse-led clinic

     

  Licenced medication handed out every 8 weeks

13

6

6

1

0

  Receive infusion every 6–8 weeks

6

0

3

3

0

  Annual nurse consultation only

6

0

0

0

6

  1. FG Focus Group, n/N number/Total, % percentage, RA rheumatoid arthritis, PsA psoriatic arthritis, axSpa axial spondyloarthritis
  2. aOne participant accepted dates for both FG1 and FG2 as she forgot and did not show up for the first focus group
  3. bReasons were Illness of own/kids/grandkids (n = 3/2/2), other priorities arose for the day (n = 2) and snow (n = 1)
  4. cUnknown reason
  5. dAverage retirement age in Denmark in 2004 (2018)